01x03 - We All Have Tourette's

[bunniefuu]

Guys, I do not
need an exorcist.

Okay? I've gotten the same
DM 12 times

in the past two days
about this doctor in Egypt

that does exorcisms
and that I need to go.

I can assure you I'm fine
and I don't need it.

Sir, yes, sir.
Drop and f*ck off.

I am in the United States
Air Force and I have
a relocation

coming up here
in a couple of months.

I cannot leave and fly across
the country in the middle
of training.

The only way we're seeing
each other is if you come
to me.

Plane rides are already hard
enough and I've never
flown alone.

Colin is my soul mate,
but I will have a tic-attack
right there in the airport.

And everyone will watch.

We're cutting

the chicken
with plastic knives.

[Baylen] They're kid proof.

She wants independence
at all costs.

I got invited to an event
hosted by the Tourette's
Association of America.

They asked me
to speak on their panel.

It's in Dallas, but like,
I'm definitely worried about
the airport.

If you have to go through
a little bit of darkness

through this airport
or whatever it is,
then just do it.

It is literally essential
that Baylen

gets out of her comfort zone
because standing still

isn't going to do
anything for her.

Because I'm so anxious
about flying... [gasps]

Everything is triggering
and your dad has a vag*na.

[Julie] Each experience
at the airport

expect the unexpected.

I have a g*n!

-[Julie] Oh, good God!
-I have a g*n.

I have a g*n.

Oh, my God, it's right there.

My neck's getting tired.

We are headed to TIC-CON
in Dallas,

which is a convention for
people who have Tourette's.

So I might be able to meet
with doctors that are able
to help me.

And I'm going to be speaking
on a panel, which is a really
big deal,

because I've never spoken
publicly before.

I'm nervous because
I didn't prepare anything.

And to get there we have
to fly, which I hate doing.

But if Colin gets relocated
and can't come back

to see me, I'm gonna
have to come see him.

So this is like a test run.

Stressed and we
haven't even moved.

[whistling] I have a g*n.

Pew, pew!

Oh, my gosh,
this is not happening.

I have a g*n.

[Julie] Your whole body,
your heart
just sinks into your gut.

And you're like, "Oh, my God,
they're gonna send us
to a back room."

It's hard as a mom to get
through these moments
with Baylen,

particularly if she wants
to be independent, get her
own apartment eventually.

I'm sorry
I just flipped you off.

I have Tourette's.

Thank goodness the TSA agent
laughs it off.

But like you look
at a situation like that

and you're like, "How is this
girl ever going to move out
on her own?"

But at least for right now,
we're in this together.

Let's get situated so you
can go take your medicine.

[makes sound]

[Julie] Do you want
to sit right here?

[Baylen] Because I'm so afraid
of heights,

I have to take pills
to knock me out on the plane

or else I will be tic-ing

the whole way.

It should absorb
under your tongue.

And it'll just hit your
blood brain barrier quicker.

Mmm.

I'm feeling it.

-[woman over PA
speaking indistinctly]
-This tastes disgusting.

Oh, my gosh, for real?
You're so dramatic.

We really need these meds
to work because we know
from past experience

that things could go
downhill really quick.

[Baylen makes sound]
Bojangles.

[softly] Morning.

Do you want to be
over at the window?

Baylen has to fall asleep
on this flight.

It's better for her.

It's better for
the fellow patrons.

Plus, she'll be totally
exhausted when we get
to Dallas.

It's better for everyone
if Baylen sleeps.

We're all gonna die.

[mimics plane falling]

But we still have
a ways to go.

[flight attendant] Ladies
and gentlemen,
please pay attention

-before you put your luggage
in the overhead bin.
-Please shut the f*ck up.

[makes sound] Oh, my God.

Why?

No.

♪♪ Yeah, we lit
yeah, we lit
yeah, we lit ♪♪

♪♪ Now we gonna turn
the party out
till the sun come up ♪♪

♪♪ Yeah, we lit
yeah, we lit
yeah, we lit ♪♪

♪♪ Now we gonna turn
the party out
till the sun come up ♪♪

Ta-da!

Thank God
that's over with.

We're super excited to be
here, ready to meet doctors

and other people with
Tourette syndrome.

[Baylen makes noise]

But Baylen was up so early
and is essentially running

on fumes at this point, and
she has to speak on a panel

as soon as we get
to the convention.

I just hope she can
make it through because
too much stimulation

and over-exertion can
certainly backfire.

Oh, my God, it feels
so good in here.

Thank you, Lord.

[driver] Welcome to Texas.

[Julie] Yeah. I mean,
we're here.

How are you feeling
about speaking on the panel?

I mean, I know that you're
gonna have some stress.

Yeah.

[Julie] I know this could
be a lot for you

because there's so many noises
and sounds and grunts

and I get to see a whole
bunch of Baylens.

And it's like a normal
situation that I cried about
for two years.

And then I look at
all of y'all together

-and it's like, my gosh--
-Vaginas,
it's raining vaginas.

-She wasn't a weirdo.
-Raining vaginas.

This is a legit situation.

I'm sorry, you thought I was
weird for two years,
only two years?

Not weird.

Only?

It's raining vaginas.

There's vaginas hanging
from the White House.

That specifically came from
walking out onto a patio

where it happened
to be raining.

And I thought, in my head,
about the movie Cloudy with
a Chance of Meatballs where

everything is raining from
the sky during certain times,
and I already tic

about vaginas and penises
a lot, so it just comes
together.

[singer vocalizing]

-[Julie] Ooh, it's Melanie.
-[both squealing]

♪♪ I like it, like it
like that ♪♪

[Julie] All right, Bay Bay.
We're running out of time,
girlfriend.

[Baylen] Let's go.

It feels so nice in here.

[Julie] This is so nice.

-All right, you're in.
-This was definitely
engineered by a woman.

-Wait. Why?
-Because there's two vanities.

Okay. You're showering.

-[Baylen] Yeah.
-ASAP.

Your mom wears Skechers.

a 20-minute shower?

All I'm doing
is washing my hair.

[Julie] Okay, I'm timing you.

[Baylen] Okay.

-[Baylen makes sound] Hi.
-[Amanda] How are you?

-Good.
-[Amanda] How was
your trip in?

Long, but worth it.

I'm actually excited,
but I'm not prepared.

I've never spoken in front
of people who also have
Tourette's.

So I don't really know how
well it will go with the back
and forth with the tics.

There's this thing
called echolalia.

Which is where I repeat tics
that other people say.

I want to keep

pushing past my comfort zone
to prove to people that I can
be independent.

But at this point,
I hope I don't
crumble underneath my anxiety.

Hello? Hello?

Hello?

Okay, everyone,
we'd like to get started,
so please take your seats.

[whoops loudly]

First, I want to welcome
everyone to TIC-CON 2024.

[audience clapping]

Today, this panel will focus
on lessons learned from living

with Tourette syndrome
in the public eye.

Our panelists, Baylen Dupree,
TS advocate.

Aidy Smith, who is our
TAA Global Ambassador.

Mr. Pete Antico, director
and stunt coordinator.

And Quincy Roche, linebacker
for the Minnesota Vikings

and TS Advocates and--

Take a picture,
it'll last longer.

I agree, it will last longer.

Thank you, Baylen.

Let's kick it off.

I'm not at all surprised
that Baylen is up there
and she's ticing.

That's expected
in this sort of a situation.

But I'm concerned
that she's going
to overdo herself.

This is Baylen's first time
speaking publicly
at a big event,

and this is a big moment
for her because only a few
short years ago,

we weren't even sure
how to get through a day.

And now here she is
on a panel trying
to help others.

But Baylen's tics
are really escalating.

I think just being in front
of a crowd like this,

with a lot of other people
ticing is really getting
to her.

So it's about to get real,
probably.

One of the things
that many people
in our community struggle with

is that they feel like they're
being treated differently.

What advice would you have
for the best way for them

to be seen for their
authentic selves?

I would always urge you
to embrace yourself

and never let nobody tell you
what you can be in life.

Like I used to put in
my elementary school
yearbook...

I put I wanted to be a
professional football player,
you know, here I am today.

You could be an astronaut,
you could be a president.

You can be whatever
you want to be.

I would I would add
to that as well.

And that was beautiful.

I would add to that.

Know that it's okay
to not be okay.

With Tourette's, some days
it's blooming hard.

It's painful.

We'll be in tears some days.

But what we learn from our
Tourette's, the empathy,
the emotional intelligence,

the cultural awareness,
that is what sets us apart
from everyone else.

And that's what creates
and allows us to be

such beautifully
kindhearted individuals.

So if you have a dream,
go out and chase it.

And don't bloody let anyone
tell you you can't do it
because you are capable.

[Baylen] Listening to the men
on the panel speak,

my tics are definitely
more active than theirs.

They're well prepared.

They're very sophisticated
and know exactly what to say.

And me, I don't know.

I have no idea.

I've actually never been so
anxious in my freaking life.

Because they, all of a sudden,
one picks up the mic,

and I'm sorry, do we have,
I'm sorry, this is the most

intelligent man I've ever
seen, ever heard.

And then there's me.

[Amanda] All right, Baylen.

One of the things that I think
makes your video so popular,

is that you inspire people
with your willingness
to be open

about what you're
going through.

Why do you think it's
important for people living
with TS

to be free to share the
challenges they face,
both the good and the bad?

Hi.

My name's Baylen.

I have a p*nis.
I have a nine-inch p*nis.

It was really,
really hard to...

I completely forgot
what I was talking about, but

going forward, with...

[audience tics]

[girl] Bombastic side eye.

God damn!

-I need a second.
-[Amanda] Take your time.

[makes repeated sound]

My tics are so bad,
my neck hurts so bad.

Like, it's just not
getting better.

I can tell that Baylen
is low on sleep,

overstimulated, hasn't eaten.

I worry that when Baylen
pushes herself, things can go
really south real quick.

[Julie] Oh, my gosh,
you're okay. You're okay.

Okay.

It's okay, you're okay.

-[Baylen] Yeah! Oh!
-[girl yelling indistinctly]

God damn.

God damn!

-I need a second.
-[Amanda] Take your time.

Why don't you just tell
the story of why you
originally started to share?

I put myself on social media
because I was followed
around a store

and I was videotaped
from a girl.

And she posted the video.

I hid from the Internet.

I was hiding from my friends.

I never left the house.

I was in therapy four days
a week... [makes sound]

Because I couldn't even
look at myself in the mirror

because I thought that my
Tourette's made me ugly.

I wanted everyone else
in the Tourette's community...

b*ll s*ck!...to not feel
alone like I did.

My tics aren't the same as
yours, and your tics aren't
the same as mine.

But we're one community
and we have each other.

And f*ck you.

Sorry.

[laughing]

[crowd cheering]

All in all, I'm very blessed
to be here. I love you.

[Julie] The panel went great
because Baylen

wasn't prompted or rehearsed
in any way, shape or form.

She was completely organic,
and I'm pretty sure she made
a lot of the parents and

the TS afflicted kids
in the audience
tear up because Bay's real,

-she's humble and
she's vulnerable--
-And I have a nine-inch p*nis.

She doesn't.

[chuckling] You want to see?
No, I'm just kidding.

It was awesome.

She did a great job.

Oh, my God, of course
I'll see you guys around.

[Baylen] There's a lot of kids
out there that

are forgotten about that

don't speak up and don't know
how to, it's sad.

Girl...

And I'm really glad that
I'm able to share
who I am in my journey.

And now I'm able to keep going
with spreading awareness

because it's so misunderstood.

-I'm Baylen.
-Nice to meet you.

Shake from State Farm.

-Hi, Jack.
-I'm Luke.

Hi, Luke.
Nice to meet you all.

You've been a huge inspiration
to our family,

-like I sat there crying
while you were talking...
-Really?

...because Jack's tics
are so similar to yours.

[Luke] We've never met anybody
like both of you,
so it's very inspiring.

And thank you very much.

Thank you.

Thank you for being
a bright light for us.

-[Jack] Thank you.
-Now I'm gonna cry.

You're a sweetheart.

I don't have a lot of friends.

I don't really feel
like I have a place.

But to be here, I have never
felt more welcome, comfortable

and at peace with not
only myself but just
in a safe environment.

And I can't wait to hang out
with my hopefully
new friends soon.

We've literally, in 11 years
never met any other parents

-with a child with Tourette's.
-We hadn't either until--

You hadn't?

Because are you always,
we're always saying, like,

how do we do this right
as parents?

-How do we say
the right thing?
-Yeah.

Because I'm like, she's
still got to be an adult.

She still has to function
in society.

She's still got to do
whatever, I'm like, I know,

but if we can help her over
here, we'll be her cushion
to fall back onto.

But we need to equip her
with everything that she needs
to do...

-Absolutely
-...to like,
put herself in the world

and walk through stores
and get stared at.

And like, you've got to go
through all those emotions.

-You can't change
people's reactions.
-You can't.

One of our goals in coming
here is to obviously connect

with other people that can
relate to us because I felt
alone for quite some time.

So I'm so excited
to talk to other parents.

I love it. I could talk
to everybody here.

I have a little bit
of Baylen in me.

Sometimes I don't stop.

I want to get drunk
with other parents.

No, I'm just kidding. I just
wanted to throw that in there.

[laughing]

You will not put that on.

You will cut that.

I have been non-stop all day.

Go, go, go!

Go and keep going.

But I miss Colin
and I just want to call him

really quickly before
I go to bed

for the rest of the day.

Hey, babe.

I just got done speaking
for the panel discussion.

I was just kind
of unprepared, p*nis.

But I felt like nothing was,
everything was just blank.

Yeah, my tics are
so bad, my neck hurts

so bad, especially like
all the way.

It's the same thing. Like,
it's just not getting better.

I'm always in pain from tics.

Pain is very common to have
with tics, especially
when you're...

doing whole body neck tics,
and it's like going to the gym

and working out
the same thing

all day.

But I met some
really cool people,

and I'm really excited
because they said that
they want to hang out.

What I hope that Baylen
gains at TIC-CON
is just friendships.

She has struggled a lot
trying to find friends.

But at the same time,
I can tell that Baylen
is low on sleep,

overstimulated, hasn't eaten
and I worry that

when Baylen pushes herself,
things can go really south
real quick.

Another thing is me and
my mom are going to be
talking to a doctor soon.

Get more wisdom,
more knowledge.

I mean, they're educated.

I know, I'm excited.

I definitely have a severe
case of Tourette's.

So one of the reasons I wanted
to come to TIC-CON was to meet
with doctors

because I really want
to get my own apartment.

But that means being able
to control my tics better.

My first line of treatment was
medication, and the medication
was great for my tics,

but terrible for my mental
health, my well being
on the other end.

So, hopefully they're able
to give me some guidance.

We support
the Tourette's community,

peace, love and p*nis, around
the corner, up the boob,

out of the tube, b*tch.

That's a new one from
four years ago.

It came from Burke.

Yeah, Katie, that tic Burke
said when he was like

-So the fact that that...
-You pulled that from
the far back...

Yes, it was going,
it just kept going.

-Snottiest part of her brain?
-Through the tube,
out the boob.

Through the corner,
out the tube, out the boob.

Are you excited
to hear it when I get back?

I love you.

Around the corner,
out the boob out the tube.

b*tch.

Around the corner,
out the boob out
the tube, b*tch.

Bye.

How are you?

Today, we're meeting
with Dr. Hermetet,

who works with the Tourette
Association of America.

And she is an expert
in Tourette.

[Hermetet]
Deep brain stimulation.

It's a brain surgery,
so it is quite invasive.

That's the last resort.

Like, they literally drill
into your head with a drill.

[saw buzzing]

[Allen] Julie and Baylen are
still out at the convention,

and so I'm here holding down
the fort with the three
younger boys.

I got into woodworking
when I was a young kid

working on my father's house
when, gosh, I was probably

eight or nine years old.
That, for me, is my therapy.

Most of my time is dedicated
to the kids and the
family, especially Baylen.

Plus, I work for
the federal government.

So as stress builds up, I got
to try and really find time
to do some work.

I know Julie's doing a good
job taking care of Baylen,

but I really worry about
Baylen when she's gone.

I have to keep myself busy.

I found buried treasures.

Let me see that one.

-Thanks, buddy.
-[Sven] What are you making?

One of you guys can take this
and put this in the garage.

That one's ready to go.

When's Mom and Bay
coming back?

They should be back
Sunday night.

Baylen is gone for
a couple of days... [chuckles]

Dude, you're literally
laughing.

It's not my fault. You just
keep looking over here at me

when you're trying to say
something. Just go.

Baylen is gone for a couple
of days at TIC-CON.

So obviously I miss her.

You said, tit-con,
you said, tit-con.

-Let's just stop it.
-TIC-CON.

-So back in tit-con...
-[Sven] You're so cringe,

it's not even funny.

I'm kind of looking forward
to them getting back here.

I like the chaos.

I like it noisy.

I like it chaotic
because that's when I know
everyone's home.

Everyone's healthy.
Everyone's doing their thing.

When it's quiet, it makes me
wonder what's going on.

Why are you being so quiet?

[Bechnir] Yeah,
it's been relaxed.

It's gonna be loud.

-Freedom.
-Freedom for my words.

When we're around Baylen,

we do need to watch our words
and stuff because she can pick
up on tics

or learn new things, and she
can, like, copy off of.

-And now she says that.
-Unbelievable.

Did you just rip a*s?

-Yeah, for sure,
I definitely did.
-No, you didn't.

Yeah.

I know you guys like it
quiet like this, but I don't.

What are you laughing at?
I know you got something.

You're gonna get used to it.

You're gonna have to.

Bay wants to move out.

Baylen's got a lot to prove
to us before she goes and,

you know, hits the streets,
so to speak.

What makes me the most
grateful is just being a dad.

I wanted as many kids
as I could have.

Once I held that first kid,
it was over for me.

I cut that cord. It was done.

And I was like,
this is fantastic.

So when the kids move out,
I'm very emotional about it.

But with Baylen, it will
really bother me
because I'm not there

should something
happen to her.

You guys can head off

and go get me some more wood.
Go over there and keep busy.

All right?

-Thanks.
-Really?

♪♪ I will rise to the top ♪♪

♪♪ Rise to the top ♪♪

♪♪ I will never stop
I will never give up ♪♪

♪♪ It's my life I am livin' ♪♪

♪♪ But believe it
'cause I'm risin' to the top ♪♪

Are you super excited?

Your hands are really cold.

God damn! God damn! God damn!

I am excited.

-I am, too.
-If you can't tell.

Today we're meeting
with Dr. Hermetet,

who works with the Tourette
Association of America.

And she is an expert
in Tourette.

Baylen wants to move out
and be independent.

But I won't feel great about
that until she has better
control over her tics.

I have tried several different
medications, however,

the side effects
aren't worth taking.

And I'm also
doing CBIT therapy
to work on my vocal tics.

You're now retraining
your brain to say I don't
have to tic.

I can breathe instead.

But it's an extremely
slow process.

So in meeting with
Dr. Hermetet, the hope
is that she will give us

some sort of a solution that
we haven't thought of yet.

All right. So how can I help
you guys today?

What's going on?

All she's done is she
has the diagnosis
and we're still in the

"now what do we do" phase.

How does she get independent?

[Baylen] Because there's
so many other areas

then my tics or my Tourette's
in my life, that's way worse
than that.

-Like OCD, ADHD.
-Right.

So 86% of people living
with Tourette Syndrome

live with other conditions,
like OCD, anxiety, and ADHD.

The best analogy I can give
is that living with Tourette's

is like living in a car,
and there's really four people
in the car.

It's tics, it's OCD,
it's anxiety and it's ADHD.

And sometimes tics are
driving and anxiety
is in the passenger seat.

And then the next day,
it can be like OCD is driving


and ADHD is in
the passenger seat.

OCD is driving.

-OCD is driving. Always, okay.
-Always. Like my
tics are always there.

But then I start
adding the threes.

And then I'm like, I need
to start hitting myself more.

It's just two more times.

Three more times.
Six more times.

OCD is always driving. Anxiety
is behind, no, anxiety...

Anxiety is behind OCD,
and ADHD is everywhere.

-ADHD is the car.
-ADHD is rolling
over everybody.

-She's the car.
-No seat belt on.

It's just literally like me
against my thoughts

every day, oh, my God,
I don't want to leave.

I do want to leave.

I can't leave because
this isn't clean
because this isn't done.

It's not only the OCD,
everything controls my life.

-[Hermetet] That's right.
-The anxiety makes
the OCD worse.

The ADHD, going out in public
makes my tics worse.

-That's right.
-It's...

You're fighting it.
You're fighting it every day.

And then I see myself
a completely different way
than everyone else sees me.

I've never hated anyone
in my entire life.

I've never disliked anyone
in my entire life

other than myself,
and I don't know why.

I love God and I love Jesus.

And I know that he made me
the way that I'm supposed
to be.

And I know that he thinks
that I'm perfect,

but in my eyes, I don't
see that, and I want
to see that.

Like, I just want to stop
struggling from myself.

I know, I know.

[Julie] We're our
own worst critics.

Yeah, we're gonna
work on that.

We're going to put together
a plan.

I am passionate about working
with the Tourette community

because they are literally
superheroes living in mere
mortal bodies.

And those superpowers are
that they're highly sensitive,

they're highly perceptive,
and they're highly intelligent

and that's actually backed
up by science.

So, yes, she has profound tics
that other people might see

when they walk past her,
and it's very apparent that
her tics are impairing.

But she's still highly
sensitive, she's perceptive
and she's intelligent,

and because of that, I think
that's what makes her so
connected to this community

is that she's living
authentically.

So are there some
current treatments

that maybe Baylen
and I don't really know about?

Yeah. So, as you guys know,
treatment line one is what's
called CBIT.

Comprehensive Behavioral
Intervention for Tics.

A lot of people with TS

are also on medications,
so those are really considered

traditional interventions
for tics, and you can also
do more

invasive processes like DBS,
which is Deep Brain
Stimulation.

So it's a brain surgery,
so it is quite invasive.

The success rate
is about 30-50%.

-Good times.
-[Baylen] That scares me.

So DBS is kind of like
a pacemaker.

Pretty much there is an
instrument here
and then an instrument placed

where we know that tics
live in the brain.

And these two instruments
talk to each other.

So is it essentially
the same sort

of mechanism treatment
they use for Parkinson's?

Similar. It's incredible,
because really, the brain

is an electrical instrument.

So what that kind of pacemaker
type tool does is interrupts

the whole tic
Tourettic process.

Lots of side effects
related to that.

But often those that are
exploring DBS

are willing to take a chance
on those side effects

because their tics have become
so profound and so impairing.

It's kind of like
all the traditional

-stuff that we know.
-That's the last resort.

Deep brain stimulation surgery

I'll never get, okay? Like,
they literally drill into
your head with a drill.

And I could pull up a picture
of the drill they use where
it's literally a drill

that my dad has in the shed
with an attachment piece

that's about this yea long.

That's a big barbecue. BBQ.

And they just, you know,
drill into your head.

My pushback would be good
therapy is invasive, right?

I mean, not brain surgery,
but CBIT, in a lot of ways,

is playing with brain
electricity, right?

Because what we're doing
is we're cueing
the frontal lobe

to get our executive
functioning in line, right?

So we're still changing
brain electricity
and brain chemistry.

But it's through a behavioral
therapeutic process,
which is just wild.

[Julie] I have an open mind
on any sort of treatment

because Baylen wants
her independence.

But being at this conference,
It's become even more
apparent to me

that Baylen's case even
stands out within
the Tourette's community.

And CBIT is great to help her
stop cursing in public
and whatnot,

but it won't necessarily stop
her from touching a hot stove

or harming herself and then
having to do it three times.

So as a parent, I would like
to at least push her

to get more of the
intricate information

in regards to DBS.

vag*na.

♪♪ If you wanna
do it harder, faster ♪♪

♪♪ If you wanna
be an everlaster ♪♪

-Let's go, Baylen.
-Maybe just sh**t straight.

I have no aim,
but we'll go for it.

[Jake] It don't matter.

-Strike one!
-Better than...

Eyes on the ball.

At least you hit the ball.

You hit the ball this time.

Today, I'm hanging out
with a couple of people

I met from the convention.

And I'm so excited.

God damn!

Oof! Oof! Oof!

Let's go.

-[Jake] There you go, Callum!
-[Emma] Nice.

[makes sound]

Shut the f*ck up!

I've never hung around
with more than one person

with Tourette's, even going
out of the conference.

So I'm excited.

Around the corner, through
the boob, out the tube,

around the corner, through
the boob, out the tube,

around the corner through
the boob out the tube.

[neighs]

-[laughing]
-Okay.

Yeah!

-See, she's got
the best look of us all.
-I came prepared.

Olivia's ready for
the golf course.

That was a good swing!

Oh, boy!

Get out of here, you donut!

I want to see your best
baseball throws.

I was worried that the other
people there with Tourette's
would set my tics off.

Turns out tics can come
from everything.

Even the camera.

Don't make me throw it at you!

-Don't make me throw at him.
-Get outta here, b*tch!

She called your boy out!

-Yeah, we're just waiting.
-We're waiting.

Sorry. Get over there.
You're done.

[Callum] You got it, Baylen!

-There you go!
-The best baseball game
I've ever played.

So obviously, like a lot
of our tics look different.

I mean, like my tics don't
look like your tics, your tics

don't look like Callum's tics
like, yeah.

-But we all have Tourette's.
-[Jake] We are a family.

I have a coughing tic.

[Baylen] You have a vag*na.

-Sorry.
-[Jake] I love that.

I didn't realize that
I had Tourettic OCD,

where I have to do things
like a certain amount of times

or like something
bad will happen.

I was diagnosed when
I was seven,

-and my dad after I was--
-I literally said I wanted it.

-We need more napkins,
we can get more napkins.
-This is a safe space.

[Callum] Errol's got a hammer.
Errol's got a hammer.

I have a g*n.

I was diagnosed when
I was seven, but I think
my tics were very mild.

And then my dad went in
and they were like,
"Mark, hmm."

-He was diagnosed after I was.
-That's insane,

that your dad went that long
without any answers.

Any answers. It's crazy.

-[Baylen] That's so sad.
-Yeah.

The hardest part about living
with Tourette syndrome,

I think would just,
I don't know.

On hard days, you know,
wishing that you weren't
here anymore.

But experiences like this
not only changes
but saves lives

because, you know,
you find your people.

You realize that, hey, I have
people just like me,

who understand what
I'm going through.

And I, you know,
I can to do this.

[upbeat music playing]

Listen, I think we should all
toast to being really
good moms.

Here's to being good moms!

Absolutely.

I've met some amazing moms
here over the last day
and a half.

And I just wanted to really,
like, just connect with them.

[Dawn] What was
the funniest tic
your kid ever had, though?

I mean, Baylen clearly tries
to find some level of humor.

-[Melanie] She does.
-If you don't laugh, you cry.

Some of the things
Jack says we're like...

And you don't want him
to think you're laughing.

-Some sort of a weird sexual--
-Oh, yeah!

Like, where did
that come from?

Was it deep down in,
or are you doing something
I don't know?

Who do I need
to talk to about this?

How about Callum?

He had one tic,
really early on,

where he would say, "I paid
five dollars for that ferret."

And we didn't have a ferret,
and I'm pretty sure that's
a bargain.

[Stacy] Cayden is 11.

He wants therapy animals
because he loves stuffed
animals, right?

He's a sweetheart, right?

I want to therapy bird.

But my goodness,
the bird chirps all day long,

-and Cayden now chirps
all the time...
-Because he picks up on it.

And so that's his therapy.
He talks to his bird.

That's a wonderful
non-medication way
to deal with your tics.

What other things
have your kids had
for treatment?

[Julie] What is everyone
doing for treatment?

We are doing CBIT.

Callum did it.

And if you ask him, he'll tell
you CBIT was helpful for him.

And in December 2022, he had
Deep Brain Stimulation surgery

They drilled holes
in his head, he was
asleep the entire time.

Then they turned it on after,
it was like a little over
three weeks.

And so when they turn it on,
is it like an instant...

Yeah, like, what happened?

They only do one side
of the brain at a time.

And if you know anything
about the brain,

if you turn on the right side,
the left side is impacted.

And so she would be
like, "How does that feel?"

And he'd go like this.

And one hand would be steady
and the other one would be
going... It was really wild.

He would tell you that
he estimates 70-80%
reduction in tics.

Wow!

Like he used to punch himself
eight, nine hours

till we had to take him
to the ER, and they would have
to sedate him.

It's super cool to hear how
successful Callum's DBS
was for him,

because I want to take Baylen
down every route possible

to see if there's a way for
her life to be made easier.

But deep brain stimulation is
a pretty invasive treatment,

and Baylen is the one that has
to sign on the dotted line.

She's an adult now, and she's
the one that has to figure it
out in the end.

[Olivia] Callum, how old
were you when you got
deep brain stimulation?

Sixteen, about...

-Seventeen?
-So it got really bad?

That was the complete last...

DBS is the severe, the severe.

And how much,

how much better do you
think your life has been
since getting it?

A lot better, I'm able
to have, like, hang out
with my friends more,

-somewhat, go in person
to school.
-Are you in less pain?

Yeah, like most of
my motor tics went away
after the surgery.

I mean, I want to say that's
great, but I mean...

Are you thinking about it?

It's like I'm here
and it's in Utah.

So it's like I have
other options first,

like I've been to CBIT.

But I need to... do more
for myself and for my
co-morbidities first.

Comorbidities, yeah.

Yeah.

[Baylen] I'm so happy
for Callum.

You can truly see that DBS
has changed his life,

but the surgery
is a no for me.

We could get all the way
through it, wake up
from surgery,

and it could not do
a single damn thing.

Fun.

For Narnia!

At this point, I'm just
scared of the unknown.

-[Julie] Oh, my gosh!
-[yelps]

Okay. Okay, okay.

It's okay. It's okay.
You're okay.

Like ASAP!

[Baylen yelps]

[Julie] Oh, my gosh!

Yeah, yeah.

Okay.

Okay. It's okay.

You're okay.
She's going to get it.

It's okay.

You're okay.

You're okay.
It's gonna be okay.

No, you're not gonna smash
your head, I'm not gonna
let you.

Stop.

I just really need ice.

She just needs ice.

She needs ice,
like really bad.

This tic attack is definitely
the worst one that she's had.

She's gonna get
really badly hurt

if I can't hold myself
together.

[Julie groans softly]

[Baylen] I'm sorry.

No, no, you're fine, honey.

Don't worry about me.

Like ASAP.

I mean, it was rock bottom.

It was rock bottom.

I'm more concerned that if she
has one of those tic attacks
to that extent,

and neither of us are there.

What do you think
of this city?

I love D.C. There's so many
things to do.

It is like the perfect place
to be at least for me.
Closer to you.

I mean, about that...

I think we should have a talk.

Shut up.

She's not easy to live with.

There's a lot, all day,
every day.

You're pissed?

You don't like Colin?

-No, I'm concerned.
-Oh, for who?

For everybody.

[Baylen] p*nis.

-Hey, y'all made it.
-[Colin] Hey. Yeah.

My parents are very
conservative and religious.

One of my favorite ones is,
"But seek ye first

the kingdom of God
and His righteousness,

-and all these things
shall be added to you."
-f*ck. f*ck, f*ck.

[Baylen] I'm very nervous
because we're sitting here
reading the Bible

and then little do we know
we're holding the secret.

And... trying to hold tics in.

Jesus take the wheel.

I'm pregnant.